The bond that started it all

Amrum and my grandfather

My grandfather was a pastor on Amrum. As a child, he was the only person I felt safe with. He never forced me to do anything my brain could not process. He was simply there, without expectation, without adjustment pressure, without the constant correction that came with almost every other kind of contact.

When he died

He died in an accident when I was ten. The bond stayed, open, unresolved. There was no ritual that would have marked a closure for my nervous system, and there was no reason there should have been one.

The autistic bonding mechanism

For me, this bond has not faded with time. It has stayed at full intensity for more than 24 years. Many autistic people describe something similar. It has not been studied, so what follows is an explanation of my experience, not a finding: a state once registered as safe and coherent may not be continuously re-evaluated, but stays stored as long as no contradicting evidence arrives. Monotropism, an attention style that gathers deeply rather than broadly (Murray, Lesser & Lawson 2005), can reinforce this: whatever once received full focus stays deeply anchored.

I experience this differently from the gradual fading many people describe. No slow decline, but a state that stays until new information changes it, and my grandfather's death never delivered that information in a form the nervous system could process and close.

"Hopeless case"

At 18 I was classified as a "hopeless case". Supported living, court-ordered legal guardianship, permanent disability pension at 20. This classification arrived at a time when the unprocessed bond to my grandfather was still active and at the same time no one in the system knew about this connection or asked about it.

Distressing, unprocessed experiences of this kind can show up in autistic people as autism combined with PTSD, where autistic processing of threat and safety shapes the symptoms differently than in non-autistic people. That was not a diagnosis given at the time. It was a child who, as an adult, was placed inside a system of external control without the underlying structure ever being named.

The way back

My first goal after that: my own bank account. It took three months. Today, after more than 130 talks, a book with Droemer Knaur and an award as WEconomy Diversity Leader, I live on Amrum, where my grandfather once was a pastor.

Why Autistic Mirror exists

This story is the reason Autistic Mirror works mechanism-first rather than deficit-first. A system that had named early what was structurally happening in my nervous system would not have prevented the "hopeless case" label, but it would have delivered a language that was missing at that time. The bond that started it all never broke. It became the foundation.

Autistic Mirror explains autistic neurology individually, tied to your situation. No promise of healing, but a language for what is structurally happening.

Sources

  • Murray, Lesser & Lawson (2005). Attention, monotropism and the diagnostic criteria for autism, Autism 9(2):139-156. DOI: 10.1177/1362361305051398
  • Rumball, HappĂ© & Grey (2020). Experience of trauma and PTSD symptoms in autistic adults: risk of PTSD development following DSM-5 and non-DSM-5 traumatic life events, Autism Research 13(12):2122-2132. DOI: 10.1002/aur.2306
  • Bargiela, Steward & Mandy (2016). The experiences of late-diagnosed women with autism spectrum conditions: an investigation of the female autism phenotype, Journal of Autism and Developmental Disorders 46(10):3281-3294. DOI: 10.1007/s10803-016-2872-8
Aaron Wahl
Aaron Wahl

Autistic, founder of Autistic Mirror

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